As I sit here writing to you, Bernadette is laying on her bed barking orders at Joseph and Catherine as they play Mario Galaxy 2 on the Wii. Too funny. I’m constantly amazed at how natural all the electronic games are to her. The last couple days she’s been bugging me to learn how to play Poptropica so I downloaded it onto my iPad. She sat in the big chair to help me play. An hour later I still hadn’t touched my iPad, she was so into the game she didn’t even realize she’d totally taken over and I wasn’t doing anything. Too cute!
That being said, Bernadette’s had three very good days in a row. She’s had three PediaSures each day and snacked too. Her energy level was higher and so were her spirits. She’s interacting with Catherine more, showing interest in Catherine’s activities again, and commenting on how much Zoe is growing, moving, and being more challenging. Yesterday with everyone either being in bed or at the movies, she was left in charge of watching Zoe for two minutes while I went to get her a bowl of Rice Krispies. All she had to do was ring the bell if Zoe was heading toward something dangerous. She was quite pleased with herself to be given such a responsibility.
Dr. Weicker was here yesterday to take a peek at her and respond to our question about a feeding tube. Marc and I were kind of thinking that with her drinking the PediaSures and perking up that maybe a feeding tube would bring her up even more and maybe put some weight back on her thin frame. We didn’t exactly get the response we were hoping for as Dr. Weicker didn’t think it would help as much as we thought it might. It kind of sounded in a way like the risks and discomfort outweighed any positive effects. It was hard to hold back the tears. It didn’t help too to find out that despite our efforts the tumour is still growing. It took me a few hours to recover my composure and focus and just decide to increase our efforts. She is showing positive signs in so many ways that it keeps our hope alive. So a feeding tube might not be the answer right now, that doesn’t mean she can’t eat and drink and get stronger on her own. So the tumour is being stubborn, it doesn’t mean we can’t keep fighting it. MOST of all, it doesn’t mean that Jesus doesn’t have a miracle planned for us down the road still. We still have reason to hope. Bernadette is obviously a fighter and we want to continue to fight right along side of her.
So in 2015 we invite you all to join us in humbly praying for a miracle. We thank you for your prayers thus far and please know that they’re so greatly appreciated. Whenever my rollercoaster car hits one of the low points I remember that you’re all praying and it give me the energy to make the next climb up. Thank you, thank you, thank you from the bottom of my heart.
May peace, hope and trust fill your hearts each day.
Lots of love and prayers
Peace, in Jesus our Redeemer,
Happy New Year to you all!